Patient advocacy for those with incredibly rare diseases
Feb 06, 2020
Christine Rowe
Patient advocacy for those with incredibly rare diseases

Join us as we hear from Christine Rowe - Director of Global Patient Advocacy for Alexion Pharmaceuticals.  Christine will be speaking about her role in patient advocacy working with people with incredibly rare diseases. Her son has a type of hemophilia where he's one of just a few in the world. Christine and our President Elect, Dan Yocum, are running the Boston Marathon in April on a team to raise money for rare diseases.

Meeting will be held at

Bay Pony Inn, 508 Old Skippack Rd, Lederach, PA 19450